MPS Transition to Adulthood Toolkit
Supporting young people with MPS as they move toward greater independence in health, education, and life.
This toolkit brings together practical guides, planning tools, and trusted information to help individuals and families prepare for adulthood with confidence.
Who Is This For?
Young people with MPS
Practical information, tools, and lived experiences to help build confidence, independence, and self-advocacy during the transition to adulthood.
Families and caregivers
Guidance and resources to support independence, navigate changing needs, and promote positive communication and support.
Healthcare providers
Resources to support person-centred care, effective communication, transition planning, and informed decision-making.
Educators and support professionals
Information to help create inclusive, accessible environments and support successful transitions in education, employment, and community life.
Module Overview
Not Sure Where to Begin?
Start with the module that reflects your current stage of transition — or begin with Medical Management if you’re preparing for increased healthcare independence.
Quick Access Downloads
All checklists and templates are available within their respective modules — and can also be accessed directly below.
Module 1:
Personal & Medical Management
Personal & Medical Management
Module 2:
Education & Employment
Education & Employment
Module 5:
Resources for Healthcare Providers
Resources for Healthcare Providers
How to Use This Toolkit
The toolkit is designed to be flexible. Move through it at your own pace.
1. Start with the Overview
Get a clear picture of what the toolkit includes and how it’s organized.
2. Download the Tools You Need
Choose the guides and templates most relevant to your current stage.
3. Work Through Them at Your Pace
There’s no fixed order — move forward in a way that feels manageable.
4. Share with Your Support Team
Bring your completed tools to appointments, school meetings, or planning discussions.