Adults with MPS and Related Diseases
To address the unique needs, challenges, and goals of adolescents and adults living with MPS and related lysosomal storage disorders.
Transition to Adulthood Toolkit
Introduction to the Transition to Adulthood Toolkit and its role in helping young people prepare for adult life.
Ongoing Adult Support
Introduction to resources designed to support adults living with MPS and related disorders throughout adulthood.
Navigating Adult Healthcare Systems
Healthcare navigation resources
Adult care planning materials
Healthcare transition support
Dating, Relationships & Family Planning
Educational resources
Planning tools
Support materials
Vocational Training & Employment Supports
Employment resources
Career development materials
Workplace support information
Aging with MPS: Research & Emerging Topics
Research updates
Aging-related resources
Emerging areas of study
Adult Peer Networks & Story Sharing
Peer support opportunities
Community connections
Personal stories and lived experiences
Quick Access Downloads
All checklists and templates are available within their respective modules of the Transition to Adult Toolkit — and can also be accessed directly below.
Module 1:
Personal & Medical Management
Personal & Medical Management
Module 2:
Education & Employment
Education & Employment
Module 5:
Resources for Healthcare Providers
Resources for Healthcare Providers