Resource Repository

Please choose from a category below.

MPS & LSD
Education Hub

Trusted information on MPS and related lysosomal storage disorders, including diagnosis, treatments, research, and support resources.

Family
Resource Center

Practical tools and support for families, caregivers, siblings, and advocates navigating life with MPS and related diseases.

Adults with MPS and
Related Diseases

Resources to support adolescents and adults with MPS through education, employment, healthcare, relationships, and independent living.

For Physicians, Healthcare Providers, and Educators

Clinical, educational, and inclusion resources to help professionals better support individuals affected by MPS and related diseases.

Global Support
Directory

Find organizations, healthcare centers, support groups, and services worldwide through an interactive global directory.

Patient Advocacy
Groups Hub

Resources and collaboration tools to help patient organizations grow, connect, and strengthen their impact.

Download Center &
Multimedia Library

Access fact sheets, videos, webinars, awareness materials, and other downloadable educational resources.

Submission and
Contribution Portal

Share resources, request translations, and help expand the global knowledge and support network.