Patient Advocacy Groups Hub

To strengthen, connect, and build capacity among MPS and LSD advocacy groups worldwide.

Open Resources

Publicly available resources designed to support advocacy organizations at all stages of development.

Organizational Development Tools

Awareness Campaign Libraries

Sample Grant Templates and Strategic Plans

Toolkits for Starting a Patient Group

Members-Only Resources

Restricted-access resources available to IMPSN member organizations. Will need to login to see this area.

Internal Governance Templates

IMPSN Planning Documents and Meeting Minutes

Policy Briefs and Position Statements

Collaborative Working Group Tools

Forum and Shared Calendar

Translatable Content Exchange Portal

Featured Downloads