A caring global community dedicated to improving the lives of those impacted by MPS and related diseases.
We do this because we care.
We care about the child who is waiting for an accurate diagnosis.
We care about the parents who feel lost and overwhelmed.
We care about the healthcare providers looking for ways to improve their patients’ lives.
We care about the advocates trying to bridge gaps in care and awareness worldwide.
We do this because we care.
We care about the child who is waiting for an accurate diagnosis.
We care about the parents who feel lost and overwhelmed.
We care about the healthcare providers looking for ways to improve their patients’ lives.
We care about the advocates trying to bridge gaps in care and awareness worldwide.
Our Mission
The mission of the International MPS Network (IMPSN) is to unite organizations and individuals worldwide to improve the quality of life for those affected by MPS and related diseases. Through collaboration, advocacy, education, and the promotion of research, the IMPSN aims to advance awareness, enhance access to care, and drive progress toward better treatments and cures.
Our Why
We understand the emotional, physical, and financial toll that living with MPS can take because we have seen it firsthand. Whether it’s the isolation of searching for answers, the overwhelming complexity of navigating rare disease care, or the frustration of not knowing where to turn, we’ve been there. Our team is made up of people who have dedicated their lives to rare disease advocacy, medical professionals passionate about improving MPS care, and community members who have walked the path of uncertainty and now want to make it easier for others.
Our Vision
The vision of the International MPS Network (IMPSN) is a world where all individuals and families affected by MPS and related diseases have equitable access to timely diagnosis, effective treatments, comprehensive care, and the resources needed to thrive, regardless of geographic or socioeconomic barriers.
Through the IMPSN, we bring hope, community, and expertise to a world that can often feel isolating. Our unwavering commitment to improving the lives of those with MPS and related diseases worldwide makes us uniquely equipped to tackle this challenge. With our experience, global reach, and deep compassion, we have the power to drive meaningful change.
Be part of the IMPSN community.
Partner with us to create lasting change.
Join us in making a difference.
Support those affected by MPS by taking action today.
